12/16 - I called the pharmacist today to see if I could take Ibuprofen with the Dilaudid for my headaches. He said that was fine. I had a POUNDING headache today, and took an Ibuprofen 600, which did not take the headache away completely. I think I'm going to start taking the Ibuprofen each time I take a Dilaudid (so, every 6 hours). Hopefully that will help.
12/17 - I didn't take the Dilaudid last night so that I could sleep better. It's funny, because I sleep better with pain than the weird things this drug does to my brain while I'm sleeping. I don't know why it doesn't make me that weird during the day, but I am so jumpy and anxious while trying to sleep while on it. I woke up with a pounding headache. I took my drugs and a few hours later the headache started going away. I am so sick of playing this cat and mouse game. I just want to feel normal again.
12/18 - Once again, I woke up with a pounding headache. I hadn't taken the Dilaudid last night before bed again....I'll have to do so tonight. It took a few hours to get the headache to go away completely. I have been noticing this last week or so that I have this random cold feeling in my arms...like someone put ice on them...but it's always on the bottom/back side of my arm, from my elbow down. I think there's something wrong with my nerves. I'm really starting to get scared. There's so much weird stuff going on with my body. I didn't think to write anything earlier this week, because I thought I was just getting sick, but my right lymph node on my neck has been hurting since Tuesday (the 14th). I was expecting that I would be getting a sore throat or a cold of some sort, but nothing has come from it. We'll see what happens with that.
I called a friend of my family, who was my first gynecologist, and has been my mom's for around 25 years. I am just worried about taking so many pain killers for what will be such a long period of time. Especially the type of drugs I'm on. My body is already dependent on it...which is why I'm getting such bad headaches when I don't take the Dilaudid for overnight. My current doctor is so nonchalant about the effects that drugs have. I have shared my concern about being on these, but he just pushes it aside. Anyway, I just wanted to get another professional's opinion. He was very surprised that I was put on Dilaudid. He said it's not something he would have given because of the dependency issue, and that he would have done some hormone therapies before giving pain killers. He explained that testosterone can help relieve joint pain. He also advised me to not take the next round of Lupron. He said that I should consider having a hysterectomy. I explained that I just can't do that right now, because I don't have 6 weeks to recover....I have a 10 month old baby! Anyway, he said that they now can do a hysterectomy laparoscopically and that the recovery time is more like 7-10 days!! WOW!! I had no idea! In this case, I am going to definitely NOT do the next round. I just can't take this pain anymore. I'm also going to talk to my doctor this next week (I have an appointment for Wednesday), about trying the hormone therapy to try and get off these pain killers. I hope this will help.
12/19 - Normal day...well, normal for me these days, which means, pain everywhere, on Dilaudid and Ibuprofen every 4 hours.
12/20 - Interesting day. I woke up with the usual pains and aches. I took my Dilaudid and Ibuprofen. Usually, after 4 hours I start feeling pain again, and will then take more drugs. Although, today was different. I started having the body aches after 4 or 5 hours, but the joint pain wasn't coming back as strong as it normally does. I decided to wait to take more meds to see what happens with the pain. The pain never got bad enough for me to take more Dilaudid. The body aches did, which has always gone away with Ibuprofen, so I took some of that. I CAN'T BELIEVE IT!!! Is my joint pain going away now?!?!?!? Am I on the downhill from here? Oh, how I hope I will have no more joint pain. It's hard to imagine not having constant pain! It's funny how quickly one can forget how easy life was without chronic pain. Like I said...it's not all the way gone, but it's certainly not as bad as it was! I feel like I can do things without wanting to sit and cry from the pain. Yes...it was still that bad...even on Dilaudid.
12/21 - I went a WHOLE DAY without taking Dilaudid! I'm still on the Ibuprofen, because of the body aches, but I had only mild joint pain all day. At around 9pm I started having more pain than I've had all day, but still not enough to take Dilaudid. I'm so happy!! :D Oh, and the lymph node in my neck no longer hurts. I never got a sore throat or a cold or anything, so that was kind of random...but the pain is gone. The headaches I was getting before are also gone...at least in the last two days I haven't gotten any.
NEW SYMPTOMS::
- Cold feeling in my arms
- Major headaches (I think from the Dilaudid)
- More pain in knees
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